Click here  to order the book.

My Journey

I was adopted at birth and for many years have been curious about my family medical history.  A few years ago (thanks to a chance DNA test) I learned I have a rare and potentially deadly genetic liver-lung disease called Alpha-1 Antitrypsin Deficiency.  This basically means my liver doesn't produce a protein enzyme that my body needs to protect my lungs, and can lead to emphysema or COPD in someone like me who has never smoked. If left untreated, it can lead to needing a bilateral lung transplant.

Due to the highly genetic nature of this rare condition and the frightening side effects if undiagnosed, the doctors encouraged me to find my biological parents to encourage them to be tested as well.

"The 50-Year Secret" is my incredible journey to find them. Thank you to everyone who has encouraged and supported me along the way.

We had a great book launch party on December 10, 2018 at Weller Book Works. Thank you to everyone who attended.

Please join me for my next book signing on March 5, 2019 at:

Santaquin Library 20 W. 100 S. Santaquin, UT  84655 from 6 - 8 pm.

Thank you for joining me on this wonderful adventure!

Julie MacNeil

Click here  to order the book.

 

 

 

Childhood Photo

Photos of me as a kid

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Funny Stories

I'm 6'4" and that can lead to some funny stories.

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Living with a chronic Disease

When I received my DNA test results it was a bit of a shock to learn I have Alpha-1 antitrypsin deficiency

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